Well Avalynn crashed around 3pm & is just now stabilizing a little. She's a fighter. Even during it with the doctor, nurse & I working with her in major distress, she'd occasionally find it in herself to smile a little. My 3 month old wants to comfort us. About fifteen minutes later she was crying out in pain & was given the biggest morphine dose she's ever had. Even that didn't calm her down completely. Other meds administered, with poor response, but she finally settled on my chest for a little while. While it breaks my heart to see her suffer, I'm glad the doctors got a first hand glimpse into what I've been telling them.

Avalynn's decline is obvious & has been picking up speed the last two weeks. The doctor only projects it to get much worse. We were made aware of our options tonight, & given the recommendation to stop her feeds since she is starving, even with them, and they are causing greater distress & suffering now, & to increase her narcotics & let her pass peacefully. Cody & I are praying & counseling what to do when. It's coming to the decision of some nutrition or breathing, as she won't be able to do both very soon.

We are hoping for information from the veptr surgery doctors soon. While she is no where near old enough, we need to try...it's her only real chance. The doctor here is helping with that.